Rosmah gives aid to infant with genetic disorder

Prime Minister's wife gives RM10,000 aid as well as various medical items.

SHAH ALAM: Rosmah Mansor, wife of the prime minister, today visited Cahaya Amanda Abdul Ghoni, a three-month-old baby girl who is suffering from epidermolysis bullosa (EB), a genetic disorder.

Rosmah, who is also the president of the Welfare Association of Wives of Ministers and Deputy Ministers (Bakti), handed over a donation of RM10,000 and various medical items.

She said that besides the donation from Bakti, Cahaya Amanda would also be given aid from the World Children’s Fund.

“Through the fund, medical products worth RM2,000 will be supplied to Cahaya Amanda each month for six months.

“Help is needed because Cahaya Amanda’s skin is very sensitive and the baby needs special medication which is expensive,” she told reporters after visiting the baby at her home at Cendana Apartment, Bukit Subang, here.

The baby’s mother, Suziana Jamaludin, 32, said she knew about her daughter’s condition two days after she was born.

“When I gave birth to her on March 12, doctors told me that my daughter may be suffering from a critical skin ailment and I was not allowed to touch her at that time.

“I thought Cahaya Amanda was just having a common skin condition but I never thought that blisters and sores would erupt on her skin, and which are so painful,” she said.

Suziana said she and her husband had to spend more than RM2,000 per month for their daughter’s treatment, which included various medication and diapers.

“Cahaya Amanda’s skin is very sensitive. If not treated properly, her skin will have blisters … her skin must be cleaned with special medicine and she needs to wear special diapers to avoid getting the blisters.

“With my husband’s income as a despatch rider, it is difficult for us to cope with the treatment costs,” said the mother of four.

- BERNAMA